Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome

Types of EDS:

Ehlers-Danlos syndromes are a group of connective tissue disorders that can be inherited and are varied both in how they affect the body and in their genetic causes. They are generally characterized by joint hypermobility (joints that stretch further than normal), skin hyperextensibility (skin that can be stretched further than normal), and tissue fragility. The Ehlers-Danlos syndromes (EDS) are currently classified into a system of thirteen types. Each EDS type has a set of clinical criteria that help guide diagnosis; a patient’s physical signs and symptoms will be matched up to the major and minor criteria to identify the type that is the most complete fit. Learn more.

Beighton Test:

The Beighton Scoring System measures joint hypermobility on a 9-point scale. The joints assessed are knuckle of both little/fifth/pinky finger, base of both thumbs, elbows, knees, and spine. Learn more.

EDS, POTS, MCAS Trifecta:

Connecting the dots with EDS, POTS, MCAS, GI, Neurological and Physiotherapy in managing pain in EDS. Learn more.

Doctors - Hospitals - Centers

Dr. Gregory NUCCA - Upper Cervical Institute of Florida

Watch Anya’s Adjustment with Dr. Nucca: Video

PBISM for PT - PBISM for Physical Therapy

Dr. Atwal, Geneticist - Atwal Clinic

Holy Cross - Holy Cross Health

Katie’s Healthy Space - Personal Trainer


Products

Products:

Body Braid:

The Body Braid creates a gentle pressure on your skin, and this pressure creates a link between your movement and the stimulation of your sensory nerves. Your brain receives enhanced information about where your body parts are, and how they are moving relative to each other.

Body Braid - Versatile Posture Support Body Braid System

EMBR Wave:

The Embr Wave 2 is a revolutionary personal thermostat that can help you feel cooler or warmer at the touch of a button to manage your body temperature and feel more comfortable throughout the day. It helps to keep me from freezing, shaking, and turning blue.

https://a.co/d/6JR3UfD

Posture Bra:

This undergarment aids by aligning the shoulders and spine, fostering an upright stance. It not only improves how you stand or sit but also encourages the body to maintain this healthier posture instinctively over time. It’s the only wireless bra I have found that makes me feel like my breasts are weightless.

https://a.co/d/3hFQvsL

Orthotic Inserts

For arch support and reduction of joint pain.

Orthotics Near Me | Find Custom Orthotics | Custom Orthotic Insoles Near Me